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Useful Links for Patients and Families

Below are a list of potentially useful links. Each of these links will open a new browser page or tab.

Stroke Quality Based Procedures Resource Centre

Through its membership in the Ministry of Health and Long Term Care ER/ALC Rehab/CCC Expert Panel, the OSN established stroke rehabilitation standards of care. This resource centre provides health system planners and clinicians with descriptions of the stroke rehabilitation standards, tools to support implementation and success stories.

West GTA Assessment Tool Fact Sheets

The West GTA Stroke Network compiled a series of Assessment Tool Fact Sheets which briefly describe the purpose, clientele, administration time, training and features of 13 assessment tools that are commonly used in stroke rehabilitation.

Stroke Rehab Outcomes Measures Toolkit

This Tool Box contains resources on outcome measures for stroke rehabilitation. It focuses primarily on the outcomes measures selected by the 2006 Expert Panel on Stroke Rehabilitation Outcomes. The report and findings of this Expert Panel can be found in Appendix M of the Consensus Panel on the Stroke Rehabilitation System Report, 2007.

StrokEngine-Assess

StrokEngine-Assess has been created by a group of experts in stroke rehabilitation. Information is provided from quality scientific articles, websites and systematic reviews.  StrokEngine-Assess provides information on outcome measures related to Stroke. After ‘clicking’ on a measure, the purpose of the measure is provided along with further options: In Depth Review, Psychometric Properties and See the Measure.

Evidence-Based Review of Stroke Rehabilitation

This review provides information about assessment tools commonly used in stroke rehabilitation research and practice including summary reviews of assessment tools used in the evaluation of Body Structure, Activity and Participation outcomes.

This module provides an overview of 30 of the most commonly used assessment tools in stroke rehabilitation research and practice (Chapter 21 of the EBRSR).  For each outcome measure the following five questions are addressed: 1) what does it measure, 2) what is the scale, 3) what are the key scores, 4) what are its strengths, and 5) what are its limitations.  A summary chart relating to the reliability, validity, and responsiveness of each measure is also presented.

Consensus Panel on the Stroke Rehabilitation System: “Time is Function”

Stroke rehabilitation, a progressive, dynamic, goal-oriented process, is a key component of the stroke care continuum, as it can significantly reduce morbidity and improve quality of life following a stroke.

Driving after Stroke for Survivors: Patient and Family Information

Stroke, Driving and the Health Care Professional: Rules and Guidelines

Guidelines for Community Based Exercise: Programs for People with Stroke

Modifying the Home after Stroke

Resource manual designed for stroke rehab therapists who assist stroke survivors and caregivers to adapt the home environment after stroke.

Enhanced Community-Based Rehabilitation for Stroke Survivors; Creating a Discharge Link

The enhanced community based stroke rehabilitation service delivered in the southeast region originated in 2002/04 pilot program in partnership with the SE CCAC and funded by the MOHLTC. The success realized by that pilot supported the implementation of a slightly modified version of the original model in 2009 funded through the SE LHIN as a pilot. The realization of continued system efficiencies and positive health outcomes supported the subsequent move to CCAC base funding. This program has now provided enhanced rehabilitation services to over 1000 clients in the southeast. To access a recent publication on this program, please see Topics in Stroke Rehabilitation Vol 21 no 6 (Nov/Dec 2014).

Stroke and Exercise

As part of the phase two of the Healthy Lifestyle Education project lead by VON Canada, representatives from the Ontario Stroke Network Community and Long Term Care, Rehabilitation and Education Coordinators developed a two part webinar series on Stroke and Exercise that was delivered earlier. The two-part educational webinar aimed to help service providers learn about more about stoke. Part 1 explained provided an increased understanding of how the brain works an awareness of stroke risk factors and an awareness of the effects of stroke. Part 2 focused on the benefits of exercise for persons with stroke, why a stroke specific exercise class may be required, how stroke affects the person’s ability to exercise and specific precautions and important safety tips. The goal of these sessions was help SMART™ leaders better understand and work with those living with stroke.

National

Alberta Provincial Stroke Strategy

Aphasia Institute

BC Stroke Strategy

Canadian Association of Neuroscience Nurses

Canadian Association of Occupational Therapists

Canadian Association of Social Workers

Canadian Congress of Neurological Sciences

Canadian Diabetes Association 

Canadian Heart Health Strategy and Action Plan (CHHS-AP)

Canadian Hypertension Education Program (CHEP)

Canadian Nurses Association

Canadian Obesity Network

Canadian Partnership for Stroke Recovery

Canadian Pharmacists Association

Canadian Physiotherapy Association

Canadian Stroke Consortium

Canadian Stroke Network

Canadian Stroke Strategy

Canadian Therapeutic Recreation Association

Cardiac Care Network 

Health Nexus: Chronic Disease Prevention

Heart & Stroke Foundation of Canada

Heart and Stroke Foundation of Ontario

Heart and Stroke Foundation of Ontario: SPARK Together for Healthy Kids

Institute for Clinical Evaluative Sciences 

Ontario Association of Community Care Access Centres (OACCAC)

Ontario Community Support Association (OCSA)

Ontario Hospital Association

Ontario Long Term Care Association (OLTCA)

Ontario March of Dimes – Stroke Recovery Network

Ontario Medical Association

Ontario Ministry of Health and Long Term Care (MOHLTC) 

Registered Nurses Association of Ontario (RNAO)

Registered Nurses Association of Ontario (RNAO) Clinical Practice Guidelines

Sodium 101

Speech-Language and Audiology Canada

International

American Academy of Neurology

American Association of Neuroscience Nurses

American Heart Association

American Stroke Association

Australian Stroke Clinical Registry

Centers for Disease Control and Prevention

Cochrane Stroke Group

European Stroke Organisation (ESO) 

Internet Stroke Center

Leiomysarcoma – Information on Leiomysarcoma for Families

National Institute of Neurological Disorders and Stroke (NINDS)

National Stroke Association (United States)

National Stroke Foundation (Australia)

Paul Coverdell National Acute Stroke Registry

P.I.E.C.E.S

Scottish Stroke Care Audit

The Stroke Association (United Kingdom)

Traumatic Brain Injury – Centre for Neuro Skills 

World Health Organization – Stroke

World Stroke Organization

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